The Patient Focused Drug Development meeting on the topic of chemotherapy-induced hearing loss in childhood cancer survivors is being organized and presented by the following national childhood cancer organizations:
children's cause for cancer advocacy
CCCA is the leading national advocacy organization working to achieve access to less toxic and more effective pediatric cancer therapies; to expand resources for research and specialized care; and to address the unique needs and challenges of childhood cancer survivors and their families.
CCCA leads efforts to ensure that these needs and perspectives of children with cancer are integrated into the highest deliberations on health care and cancer policy at the Federal level.
children's brain tumor foundation
The Children's Brain Tumor Foundation is the nation's leader in quality-of-life programs for families with children affected by brain and spinal cord tumors.
CBTF was founded in 1988 by dedicated parents, physicians and friends. Their mission is to improve the treatment, quality of life and the long-term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
mattie miracle cancer foundation
Mattie Miracle Cancer Foundation is dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families, and medical personnel.
Mattie Miracle seeks to address the psychosocial issues associated with childhood cancer head on. Using awareness campaigns and education, support services, coordinated care and research, they aim to help children and their families manage and cope with childhood cancer so they not only live to tell the tales of how they beat cancer, but are able to do this with dignity and a high quality of life.
Momcology is committed to extending the benefits of community by providing reciprocal peer support models for childhood cancer families.
Momcology provides modern and intuitive national platforms for primary caregivers to connect with each other, support one another, seek current and timely information, and begin the long-term healing process after a childhood cancer diagnosis through a strong, resilient and educated peer support community.